Wednesday, November 5, 2008

Finally Home

After being in the hospital since the 22nd of October, we are finally home! Our little Kaylee bug had a big adventure which consisted of, needles, blood, IVs, spinal tap, x-rays, urine samples, no food, 100 nurses and of course all her doctors. We went to the hospital after she had been sick for about a month with cold/cough/fever/crankiness....we had made many doctor trips & visits to the ER before this admintance. She got an x-ray on the 22nd like she had so many other times that month but this time it came back with pneumonia =/ They also wanted to do a spinal tap to make sure her spinal fluids were fine since she had been sick for so long and the symptoms were so easy to be many different illness's. The spinal tap was clean, Thank you God! We were admitted and put on the 2nd floor, they started her on antibiotics through the IV(which was a scalp IV) and they started some breathing treatments. The next day the GI doctor came to see her and we concluded that since her Nissen came un-done that this pneumonia was more thank likely from aspirating & that putting her on a lower rate until surgery had failed. The GI doctor did not want her eating because he was afriad she may aspirate and make matters worse, so we were looking into getting her a G-Jtube so she could start feeds again. Well they dont have a G-Jtube in Kaylee's size, she has a 12French and the smallest they come in is 16. SO then the GI doctors tried to rig up some tubes and make a G-Jtube but it all failed. Every attempt to get a G-Jtube in failed. So in the mean time Kaylee would not eat. To fast forward things Kaylee didnt eat for 4 days before they put her on pedialyte 2MLs an hour, which was....basically nothing. Another couple days went by and then it was the night before her surgery and her IV came out, she had this huge bubble on her forehead where it had been trying to pump the IV fluids in her. So it was either find a new IV location on her or feed her. We insisted on trying to feed her first, keep her elevated and watch closely. They had her on Zantac the medicine that helps keep food down so why not? So they talked to the doctors then agreed to try this, but they had to get her from 2MLs to 16MLs to equal out to the fluids that the IV was giving her, the amount she needed. So it went 2MLs, 4MLs, 8MLs, 12MLs, and finally 16MLs over so many hours. Kaylee did fine with the feedings. Her surgery went great, they had to re-do the Nissen and put a whole new g-tube in because her other spot leaked like crazy because the lining of her stomach was coming out &.....long story short...it wont fix you have to re-do the hole. We spent 3 days in the PICU and went to the 4th floor and a couple more days went by and we got to come home!!! Kaylee so far is doing great, still giving her breathing treatments here at home, and she is on O2 at night.

To update the family now, life is rough. The economy is unpleasant and I can only pray that this new president really changes the economy for the better. We are happy as a family it just seems as though so many problems keep arising.

Halloween was super fun. Krista was Arora also known as Sleeping Beauty and it was so fun to watch her trick or treat this year. She caught on fast and was so excited to go to each door and then she got wore out and wanted to stop between each house to eat some candy =] it was fun. Kaylee was in the PICU for Halloween but after taking Krista trick-or-treating me and Nate went back up there and put Kaylee in her little skeleton onzie, it was too cute.

I cant even express how happy I am to be home, Kaylee is laughing and smiling & is starting to realize we are home also. We didnt get to hold her much in the hospital she was cranky when we tried or she had so many things hooked up to her it was just hard trying to get her comfortable without pulling on this IV or that tube or her oxygen...I love being home. I love how she makes strawberries and she loves her sister it seems more and more each day. Krista can make Kaylee laugh no matter what she does, its a beautiful thing to watch.


OH and they shaved more of her head, she officialy has a mullet!

All the pics are in reverse on how the story went, so hope it doesnt confuse you!


Baby's First Halloween

My Little Skeleton =]



Krista was my Princess





My Love & Krista

Kaylee's super mullet, this was after surgery in the PICU







Before surgery, Krista loving on Kaylee


Big smile from the baby
My babies hands


Kaylee smiling with Krista


Kaylee holding Daddy's hand

IV in the forehead =(



My Favorite, her hands





I only wished I had those lashes


I dont know what she was doing, but she was not pouting..it was funny & her hiney was hanging out


Big Yawn =O)

No more pics mom, Please!




7 wonderful comments:

Karen said...

Poor Kaylee! She has been through a lot these past few weeks. I loved your photos - Kaylee and Krista are both gorgeous, and you can see how much Krista loves her baby sister. I hope Kaylee continues to heal up well from her surgery and the pneumonia.

Heidi @ GGIP said...

I'm so sorry that you all had to go through that the past weeks. I'm glad to hear your home and I hope it keeps improving!

The girls were BOTH cute on Halloween and it looks like you made the best of it all.

Rachelle said...

Super cute costumes! Your girls are adorable! Sorry to hear Kaylee had to go through all that. I'm glad you all are home now and that she is feeling better. Thanks for the great update!

Misty said...

WOW!!!!!!!!!!!! i had no idea that she was going through all of that. i am so glad that she's home now and that things are better! LOVE LOVE LOVE the pictures of your girls!

and i loved looking at the pictures on myspace too :)!! i have been having a hard time logging onto facebook, but will add you asap!

give your girls a squeeze from mason and me!

Deni aka Mrs Chicken said...

Hey Leslie Anna, you will never tire of hearing this, but your girls are gorgeous! And I am so glad to hear that Kaylee is back home and feeling much better.

I love seeing all the photos, and the first thing I said to my husband wash, "check out this bub, she is a spitting image of Mason, they could be identical twins!" This was before coming across Misty's comments.

The first night that we learnt of Taelan's possible diagnosis, I hopped on and googled CdLS. It was heartbraking and scary at first, and then I came across Misty's blog. In that moment a weight lifted.

I look forward to following your blog, and watching the girls' adventures.

Rhonda said...

Your girls are adorable. I found your site through Misty's. My son has CdLS. He is 20. I have felt alone for so long but now feel like I have a whole new family. Even though my son is older I so enjoy reading about everyone else's little ones. Can't wait to hear more about your family. I'm glad Kaylee is doing better.

cdlsva said...

You have two adorable little girls! I found your blog through Misty's site. Kaylee and Mason look a lot alike!

Sorry Kaylee has been through so much recently, but I'm so glad she is home and doing well.

I have two girls, the youngest (Jessica, age 12) has CdLS. I hope you don't mind if I add you to my blogroll :-)